Over the past few months it has become difficult coping with bechet syndromes effects. I guess you could say it’s wave 4, after multiple endless clinic visits for rheumatoid arthritis,eye and oral. It feels like the road ahead has gotten longer and longer.
Bechets syndrome affects different parts of the body, in my case it’s my eyes and joints, my challenges over time are doing simple house chores which have become harder for me making me extremely fatigued and leaving in me with bad joint pains. especially when the weather is cold outside. spending extended time on my feet or even sitting too long causes me pain and numbness in my joints. i know for some this may seem mundane and not very serious but when your used to being active like myself and pushing yourself and getting things done, to slow down and suddenly it’s like you’ve aged inside but not outside your body. suddenly simple things become harder than they should be. It makes me feel less of myself, weak and seldom like i’m not myself anymore. I feel my body slowing down and it worries me, my diet has changed besides the obvious no alcohol because of my steroid medication, i can’t drink certain things or eat certain foods and it seems like i’ll be on this medication for a long time because nothing else has been working up until this time. But i haven’t let that stop me from enjoying life, i didn’t come this far for an annoying boss to whoop my butt and send me to the game over screen , no sir.
I’m going to keep on pushing forward and keep a positive mindset, like any “good ” video game even after the game over screen you get another chance, might have to insert a few coins but second chances exist and this is mine so i’m making the most of it. One game that has played a significant role in my second chance is slime rancher, an amazing little game with so much to offer. Great graphics, cute animations, breathtaking landscape and so much more. But this i will cover in the next blog so stay tuned and stay wiggly.
J's Journey 